MN RSD Coalition

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Coming Soon!


We'd like to put faces to this disease. We are so much more than our diagnosis. 

We would love to have a photograph of you, a piece of artwork or a sketch...anything that symbolizes the wonderful, unique you.

Tell others of your life with RSD. This is an area to share your story and let others know we are resilient, good people with a real disease and deserve to be treated with respect and dignity. Not everyone is symptomatic and we fall into the invisible disease trap all too often. We are not looking for sympathy, but simply to be heard. Share with others how you've accomplished all you have. Give the newly diagnosed hope for the future.

There will be  member personal stories and experiences and lessons learned while they continue their journey living with RSD/CRPS.

  • What are some positive things you've learned about yourself along this journey?  
  • When were you diagnosed?
  • How long until diagnosis?
  • What would you like people to know?



We ask you do not share your full name...either initials, first name or anonymous.