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MN RSD Coalition

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Welcome

The MN RSD Coalition is an organization dedicated to providing support for those affected by Reflex Sympathetic Dystrophy Syndrome (RSD), more recently referred to as Complex Regional Pain Syndrome (CRPS) since 2002.

We believe a positive outlook is a vital part of our care. Everyone has a right to be heard, believed, and treated with respect and dignity. 

By using a humanistic approach, we encourage each member to become more self-aware, find their inner strengths, learn positive ways of communication, and use various pain reduction techniques. 

Open, honest communication and full compliance with a pain program as prescribed by your physician, humor, and various relaxation techniques empowers a person with RSD/CRPS to better control many aspects of life with this disease.

Your pain care provider may prescribe physical therapy, talking with a pain therapist, and various treatment modalities they deem necessary in providing you with the best care possible. Even though it is difficult at times, staying physically and mentally active is vital to ensure a full, happy life with RSD/CRPS.

Certain environmental factors such as weather, state of mind, and stressors play a significant role in our pain levels. We have little to no control over many of those factors, but some we do. It is how we react to areas we have no control, coupled with our state of mind at the time, that can dictate the severity of our pain. Each person has the power, the ability to decide how he or she will react to the pain. Being cognizant of these issues gives us the opportunity to either simply exist or fully live our lives.

That choice is up to each person. We are here to help in any way we can.

 

News Feed

(Updated: 11/17/2017)

Group Meetings

 
Happy Holidays from the MNRSD Coalition!
 
Due to the upcoming holidays, there will be no meeting in November or December.
We want to wish all of you and your families the best of the Holiday Season.
 
If anyone does need any assistance with your RSD/CRPS concerns during this time, please feel free to contact Samantha at 952-220-4596 or Diane at 651-459-5856.
 
The next meeting will be in the New Year on January 27th, 2018 from noon (12pm) to 2:00pm at the Savage Library.
 
Sincerely,
The MNRSD Coalition
 
[Posted 11/17/2017]
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Site News

  • Last month's group discussion topic has been posted to the forum in the members only section of the website. [posted 3/12/2017]
  • The 2017 group meeting calendar is up on the 'Support Groups' page. [posted 1/21/2017]
  • New products are being uploaded to our Awareness Merchandise stores, Zazzle & Logo Sports Wear. [posted 12/5/2016]
  • A new app has been added to the resources page and an update to a treatment article has been made on the forum in the members area. [posted 8/11/2016

Coalition News

  • It is with broken hearts that we must inform you of the passing of our founder and dear friend, Bonnie Scherer on Tuesday, August 22, 2017 . Out of respect for she  and her family, the August meeting is cancelled.

     

    Services to celebrate Bonnie's life are as follows:

     

    Tuesday, August 29, 2017

     

    St. Michael Catholic Church

    16311 Duluth Avenue SE 

    Prior Lake, MN 55372

     

    Visitation:  9:30-11:00 AM

    Funeral: 11 AM 

    Luncheon after cemetery at church

     

    We ask that you please keep Bonnie, her daughter Miriah and entire family as well as all those who know and love her in your thoughts and prayers during this extraordinarily difficult time.

     

    Below is a letter that Bonnie wanted to share with you all.

     

    Samantha, Diane, and Todd

     

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    "Don't walk behind me; I may not lead. Don't walk in front of me; I may not follow. Just walk beside me and be my friend." - Albert Camus

     

    Dear All:

     

    We at the MN RSD Coalition are the definition of "family" and as such share the good, the bad, the joys and sorrows of life with one another.

     

    As you know, I have been diagnosed with cancer and have been undergoing treatment. It saddens me to have to tell you that my journey here on earth will soon come to its conclusion. 

     

    Founding the MN RSD Coalition is one of my greatest privileges and joys. I will always be a part of the Coalition family and I write today to thank you and to express my gratitude to each and every one of you..

     

    Thank you everything. For your understanding, love, support and for eighteen years of friendship.

     

    I will hold you all in my heart forever.

     

    - Bonnie Scherer 

     August 19, 2017

     

  • It is with heavy hearts that we must inform you of the passing of one of our members and former leads. Michele Hannah  passed peacefully at  her home on the evening of Friday July 28th, 2017. She was 44 years old  A brilliant individual, talented photographer and good friend she was struggling with RSD & other health issues and at this time no one is quite sure what happened.
     
    Michele is and will always be deeply loved by her family and friends and will be missed by all who know her. 
     
    Michele's Obituary link is below. We ask that you keep Michele, her mother Dae and her other loved ones in your thoughts and prayers at this time . Please sign the guestbook and if possible attend her services 
     
     
    Bonnie, Diane, Samantha, & Todd
  • Thank you Marina V for allowing us the use of one of your wonderful songs,  The Strength I Need, as our theme song.  Please support Marina V. by going to her web site and seeing more on this very beautiful and talented artist! www.marinav.com